This week

We had a rough week last week - but there is good and bad in that.  On Monday I was at the park with a friend who I hadn't spent time with in 4 years.  While we were there, Aspen fell and had a seizure.  She actually had 2 previously in the last year, so it was her third seizure.  We called 9-1-1 and went in an ambulance to the hospital. My very brave little girl waited patiently, despite being hungry and tired, while we waited for the doctor. They checked her heart (which is fine) and got us in to see a pediatric neurologist on Wednesday.

On Wednesday she had an EEG, which measures electrical signals in the brain. Again, she was the perfect patient as she was instructed to lay perfectly still with 25 leads on her head. At the end of the 25 minutes with the leads on her head, they determined that she has irregular activity in the temporal/occipital area in the left hemisphere.  This is important because most of the seizure activity occurred on the right side of her body.  Because movement is controlled contralaterally, this pattern of activity makes sense. The doctor told us a few things: 1.) this could be residual activity that was leftover from the Monday seizure. 2.) She will likely outgrow this given her age and the lack of a family history of seizures. 3.) She is having partial complex seizures (because we needed a name to google.) 4.) She is in no way severe enough to be on medication or to be rushed into treatment of any kind, however, there are things we need to change to make her life safer.  I am feeling okay about what is going on with her, or maybe I had to because the next day we had an appt with Hunter's immunologist.

On Thursday morning we got up bright and early, dropped Landon at school and Aspen at Megan's house. We went to Children's Hospital to see Dr. Church. He determined that Hunter is, indeed, doing better than ever expected. Therefore, it is possible to do a trial off of his infusions for the summer and then we will recheck blood levels. The risks of being off of the infusions are great, and incredibly scary.  It is testing my faith to take him off of them, but there is no way that I wouldn't give him this opportunity. Dr. Church said that in rare instances it just takes an immune system a longer time to mature. It is possible that Hunter's immune system has matured and he will no longer need infusions of any kind for the rest of his life. Keep him in your prayers.

On Friday, I pretty much laid in bed all day, completely exhausted from the week I had. Now it is Monday and I am doing a little bit better. I am so hopeful (and prayerful) that my kids will both heal and we will be onto the next challenge before long.

I was folding a HUGE pile of laundry just a few minutes ago.  It was probably 8 loads of laundry (because I didn't fold any laundry last week being as overwhelmed with life, as I was.) Anyhow, I was thinking that to a little person, looking up at my bed, that pile of laundry was insurmountable.  Then I was thinking that if I were on the fan, looking down, it would look tiny.  So, life is all about perspective.  I was thinking that our Heavenly Father is able to put all of our "problems" into perspective because he can see it from such a different perspective than we can. Anyhow, that's my spiritual thought for today. I'm going to trust Heavenly Father to take care of my babies. There you go - let is show! let is show! (I'm letting my faith show.)